sarcomas

[Nynick81]

Just found out a few weeks ago that my little girl has a sarcoma on her leg. From what I know they are a rare form of cancerous tumor. At the moment she is being treated by Vanderbilt pediatrics oncology unit. We are currently awaiting a second opinion on a course of action. I'm curious to know if anyone on TGO has ever had a family member that has been treated for any type of sarcoma?

[Dustbuster]

No, but having been involved in numerous cases at Vandy pedi ctr, you're getting here the best attention in the world imho.The oncology and internal med staff is phenomenal,and  the hospital has a great track record for research and performance....Of course well keep her in our prayers!!

Edited May 19, 2014 by Dustbuster

[Ugly]

My sister had liposarcoma. From what I understand that form is extremely rare and difficult to battle. It grows on fatty tissue.
Once they have concluded what type your little girl has then do research. I am sorry to hear about her but I hope it's an easy battle!

[Nynick81]

Thanks for the prayers dustbuster, they're always appreciated. Ugly, sorry to hear about your sister. See that's the problem with my daughters case, they are having a hard time identifying the exact type it is. When I was a kid my uncle died of a sarcoma near his spine. Cancer runs deep in my immediate family, its taken 7 already, and all different types to. So needless to say this is scary stuff. Now vandy wants to just go in and remove it, but also a good portion of her muscle and tissue along with it. Only good news right now is it was caught very early and the oncologist said it seems to be slow moving. So he said for us to get a few opinions if we wanted. The nerve racking part is waiting. Thanks again for the thoughts and prayers. Edited May 20, 2014 by Nynick81

[hipower]

My prayers for your daughter, you, and all your family. As a 4 year survivor of leukemia and lymphatic cancer, I do know the toll it takes on family as well.

I have no knowledge of the sarcoma forms, but cancer can be beaten. I am proof of that. I was not expected to be here now. It can be beaten.

And although my journey was with the Sarah Cannon Center, I have all faith that the Vanderbilt team can and will help you.

And as far as a second opinion, don't hesitate. Look and ask questions till you are comfortable with your chosen doctors and treatment. Also, if feasible, Look into St. Judes.

Wonderful things happen there.

Above all, be strong and have faith. Please let us know if anything we can help with. Edited May 20, 2014 by hipower

[Ugly]

Well I don't know if it's good news but it doesn't sound like liposarcoma, it wouldn't attack muscle so early.
I'm sure the folks over there are the best around and she is in good hands.
I have and will continue to pray for your family! I hope you have a quick diagnosis and procedure with full recovery!

[RC3]

Sounds like something my brother had. Forgot the exact name, but he hard a tumor growing on his knee and it was not malignant when vandy did the biopsy. It has been surgically removed, but he still have a few issues here and there with pain and fluid buildup. Hope for the best, its not easy when its a family member on the line.

[Fourtyfive]

Prayers and hope sent.

[Nynick81]

I want to thank everyone for the thoughts and prayers. Hipower, that's great news on being a four year survivor. I pray that you never have to worry about that again. I'm sorry I have not updated on this but I have just been in another world mentally. We decided to go ahead with vandy doing the surgery. We had a long sit down with the surgeon that was going to perform the operation, and during our long conversation I had a sense of peacefulness come over me that I cant say I fully understood but I felt very reassured that everything would be ok. So her surgery was this past Tuesday and the Dr. Said she was very pleased with the outcome. They did several needle biopsies of the surrounding tissue while she was in surgery to tell them if they needed to take any more tissue or muscle and all of the results on those biopsies came back negative. So that was great news that they only had to take a minimal amount of muscle surrounding the tumor.she cant walk for a week but we go back this Thursday to get her stitches removed and hopefully more clarity on the type of sarcoma it is. I want to thank everyone again for the thoughts and prayers. I know she's not out of hot water yet, but it's definitely a step in the right direction.

[Grand Torino]

May God be with your little girl and her family.

[hipower]

That is Wonderful news!! My continued prays for you all.