Part of my job as a dad

[RED333]

I wish I had the words to lighten your heart, but all I have is my prays for you and yours.

O Lord, thank you for another day, please look after this family, help them at this time. Thank you Lord for another day.

[Dirtshooter]

Alleycat, sorry for your pain brother. It sometimes is hard to expose your trials like this. I think I can speak for all of TGO, we are here for you. I will continue to pray for your little girl and your family. I won't sit here and say I know what you are going thru, because I do not have a clue.  Holler if you want to talk. Mac

[gregintenn]

3 hours ago, alleycat72 said:

They think it's a problem with her medication for her diabetes insipidus. Her adrenal insufficiency causes all kinds of issues. When she's at risk of adrenal crisis we have to take turns staying up with her. On a normal night we just get up every hour or so and check her. Before she goes into crisis, we "normally" have a few weeks when she's having odd issues that gives us a heads up. The result is an extreme change in multiple things like blood sugar, sodium, iron, magnesium among others. In one instance all of her hair fell out in less than a week.  We were told nothing was wrong with her from one doctor. A second doctor told us she had leukemia. A low level lab tech that couldn't sleep at night figured it out. We know we're not going to catch it one time and we're going to lose her, but we knew this going in. She was never supposed to walk, talk, eat real food, have any kind of vision, or live this long. It took me 8 months to get her eating baby food. 5 months to crawl. 1 year to walk. 2 years at potty training. Her bio mother was keeping her and one of her brothers locked in a closet. She was literally a blind feral child when we got her. We can't control a hart problem, but after working with her medication, she hasn't shown any issues in two days. I hope they are correct. I usually stay put together when it comes to her, but once or twice a year I have "a night". I know I shouldn't have put this out there for you guys, but I did.  Lately I've had zero tolerance for anyone's BS and two things have been going through my mind. One was that someone told me this was my fault because I didn't pay and I was getting pushed because of it. I did not hurt the guy and I regret that. Just being honest. The other was something her bio dad said to me. We met him in court. He was in shackles, handcuffs, and a tether between them. They had him in a wheelchair and he was tied to it with a chain. An officer told me to just look in his direction and the the meeting was over. Two police officers had their hands on either sholder and one officer was between him and us with his hand on his sidearm the entire time. He had already been sentenced to 28 years in prison. He begged me to not tell the kids what he had done. He told me how much he loved the kids and I believe him. He thanked us several times for adopting his children. He also asked that we tell him when my little girl dies. He's a huge POS an yet he's the only one in their "before life" that gave a ####. 

You are a hero in my eyes for taking on such a challenge. I wish I had your bravery and strength, but sadly I do not.

[Quavodus]

I've got a lot of respect for you brother. Bless you.

[peejman]

7 hours ago, alleycat72 said:

. I know I shouldn't have put this out there for you guys, but I did. 

You absolutely should have, we're all glad you did. You don't have to bear this burden alone, everyone needs help sometimes. 

[hipower]

10 hours ago, alleycat72 said:

They think it's a problem with her medication for her diabetes insipidus. Her adrenal insufficiency causes all kinds of issues. When she's at risk of adrenal crisis we have to take turns staying up with her. On a normal night we just get up every hour or so and check her. Before she goes into crisis, we "normally" have a few weeks when she's having odd issues that gives us a heads up. The result is an extreme change in multiple things like blood sugar, sodium, iron, magnesium among others. In one instance all of her hair fell out in less than a week.  We were told nothing was wrong with her from one doctor. A second doctor told us she had leukemia. A low level lab tech that couldn't sleep at night figured it out. We know we're not going to catch it one time and we're going to lose her, but we knew this going in. She was never supposed to walk, talk, eat real food, have any kind of vision, or live this long. It took me 8 months to get her eating baby food. 5 months to crawl. 1 year to walk. 2 years at potty training. Her bio mother was keeping her and one of her brothers locked in a closet. She was literally a blind feral child when we got her. We can't control a hart problem, but after working with her medication, she hasn't shown any issues in two days. I hope they are correct. I usually stay put together when it comes to her, but once or twice a year I have "a night". I know I shouldn't have put this out there for you guys, but I did.  Lately I've had zero tolerance for anyone's BS and two things have been going through my mind. One was that someone told me this was my fault because I didn't pay and I was getting pushed because of it. I did not hurt the guy and I regret that. Just being honest. The other was something her bio dad said to me. We met him in court. He was in shackles, handcuffs, and a tether between them. They had him in a wheelchair and he was tied to it with a chain. An officer told me to just look in his direction and the the meeting was over. Two police officers had their hands on either sholder and one officer was between him and us with his hand on his sidearm the entire time. He had already been sentenced to 28 years in prison. He begged me to not tell the kids what he had done. He told me how much he loved the kids and I believe him. He thanked us several times for adopting his children. He also asked that we tell him when my little girl dies. He's a huge POS an yet he's the only one in their "before life" that gave a ####. 

Ok, now you have me in tears...but a good kind. Whether you believe it now or not; God has blessed you and your wife. You chose to care for one of his special children. That alone makes you  special in the Eyes of God...and hero to me. 

You no doubt have had times of intense pain, but I bet you've also had a father's pride in taking this child and putting her in a loving home and caring for and raising her. Again, you are a hero, a special person. A chosen one.

I believe this with all my heart. I am a sinner with little accomplished in my life that I could be proud of or call good works. You have this. 

I can only imagine the pains and the strength it has taken for you in this task.

But you took it on, out of love I'm sure. For that alone you are Blessed by God.

Pray my friend. Pray for you daughter, your family, and for yourself.

Be strong. As strong as you were when you began this journey.

Your reward will come. I know not when, nor how, nor in what form...but it will.

Remember this. You have family here to call upon.

God Bless and Keep you all. 

Edited February 8, 2021 by hipower

[Jamie Jackson]

God Bless you, your little girl, and your family Sir.

God Bless all that have shared here. I am humbled, and appreciative.

[pop pop]

Prayer for you and your family. 

[pop pop]

Praying for you and your family today, Lords will be done.  (Monday).

[xtriggerman]

This level of pain born out of frustration has to be a hammer blow to any good man's hart.... I feel for you & family. Its been 46 years since I watched my 19 year old brother die in a horrific motorcycle accident. All I can feebly say is its a chosen path of life lain before us. Pain full as it may be, especially when being born by children. After my incident way back then, my prayers brought me into a vision with JC and we had an in depth mind to mind conversation. Trust in that he feels your Daughter's and your families pain. His plan is to raise us up to the next level beyond the temp home we have in these cells. Your Daughter, God Bless her golden hart..... set out to do Gods plan for people. Raise them up to "feel" beyond their own skin despite what she was knowingly in for. Saints will walk in her shadow. You my friend, are learning in one fell swoop what others take eons to learn. Even tho it feels like you are as useless as trying to weld water...... We all have God's love (knowingly or not) but its folks like you that earn his respect big time. Mam Oh man, wisdom IS coveting that heavenly jewel.  Just one more thing from my vision.... When our eyes met each other's gaze, no words can describe.... Imagine seeing our universe on the head of a pin and yet feeling/knowing every molecular movement within it all at once.  Each breath we exhale is a Hi Fidelity sound wave permeating God's living room. Trust in him..... cuz the power I saw in him will blow up your brain cells..... big time.  Sorry for the rant... but its what I learned to keep a bullet out of my head. Prayers your way.....

[larry1096]

All I can add is, don't give up; doctors can be skilled and gifted, but aren't always right.

Growing up, my brother's best friend was a goofy, smart, funny kid born with half a heart; the doctors told his parents he would only live to about 12. Advances in technology, along with old-fashioned toughness, brought him almost to 40.

After a back surgery that went bad years ago, I was told I'd never walk again; when I walked, I was told I'd never be able to work. I went on to earn four black belts, race motorcycles and live a fine life.

The point is, every person, every medical case, is individual. Never accept a limitation a doctor tells you, work to create a better path forward for your daughter and your family. 

 

Larry

Edited February 12, 2021 by larry1096

[Dirtshooter]

And most of all GOD is always in control. Doctors don't do the healing GOD does!!!

[A.J. Holst]

So many times when I say I can't, He says, "forget EVERYTHING for this moment and allow my  love, peace and grace to refresh you.

https://youtu.be/thSOeSduSDQ

 

 

Edited February 16, 2021 by A.J. Holst